The Lived Experience of Mothers with Children Who Have Mental-Motor Disabilities (An Introduction to the Psychological Challenges of Articles 53 and 56 of Family Protection Law and Young Population)

Alaie, Parvaneh; Hokmabadi Goshuni, Maryam

doi:10.22059/jwdp.2023.359021.1008339

Document Type : Research Paper

Authors

¹ Assistant Professor of Educational Psychology, Family Studies Department, Faculty of Education and Psychology, Azarbaijan Shahid Madani University, Tabriz, Iran.

² Graduated with a master's degree in women's studies, Azarbaijan Shahid Madani University, Tabriz, Iran.

https://doi.org/10.22059/jwdp.2023.359021.1008339

Abstract

In recent years, due to the decrease in the rate of childbearing, efforts have been made in the policy system, among which we can mention the plan for the youth of the population and support for the family approved in 2019. The limitation of screening is mentioned in this project. The purpose of this research is to identify the individual-social considerations of eliminating the screening of pregnant mothers before the birth of a child. The method is qualitative and its approach is phenomenology. The data was collected through semi-structured interviews with mothers who have a disabled child and who visited the rehabilitation center for speech therapy and occupational therapy classes. The data were classified into two groups, individual and social. Individual issues include educational problems, lack of information and ignorance, feelings and emotions, communication issues. The social part includes social labeling and social support. As a result the presence of a sick child in the family has many effects on all aspects of the life of the family members, especially the mother. It is hoped that the results can be effective in reducing public concerns in such a way that policies related to population increase work more successfully and The psycho-social challenges of the screening of pregnant mothers before the birth of the child should be better answered. In the end, the efforts made will be reflected in the increase of healthy population, Until the correct legislation is realized in line with the interests of the nation and the government.

Keywords

Main Subjects

Women's Studies

References

Ahmadi, Kh., Khodadadi, Gh., Anisi, J., & Abdolmohammadi, E. (2011). Problems of families with disabled children. Journal of Military Medicine, 13(1), 49-52. (In Persian)

Ahmadifard, S., Nikkhoo, N., & Mahdieh, S. (2021). Investigating and analyzing the reasons for abortion and the related rulings based on the opinions of Ayatollah Makarem. Imami Fiqh Studies Quarterly, 9(17), 49-75. (In Persian)

Akrami, S. M., Parvin, K., & Razmjoo, M. (2021). Legal review of fetal health screening and medical abortion in the population rejuvenation plan and family support. Medical Law Journal, 15(56), 505-516. (In Persian)

Alaee, N., Shahboulaghi, F. M., Khankeh, H., & Mohammad Khan Kermanshahi, S. (2015). Psychosocial Challenges for Parents of Children with Cerebral Palsy: A Qualitative Study. Journal of Child and Family Studies, 24(7), 2147-54. https://doi.org/10.1007/s10826-014-0016-3

Dashtikhani, V. (2018). Validation of fetal health screening tests for chromosomal disorders and its comparison with invasive confirmatory tests. Master's thesis. University of Science and Art, Yazd, Iran. (In Persian)

El-Hattab, A. W., Almannai, M., & Sutton, V. R. (2018). Newborn Screening: History, Current Status, and Future Directions. Pediatric clinics of North America, 65(2), 389–405. https://doi.org/10.1016/j.pcl.2017.11.013

Gharibi, H., & Gholizadeh, Z. (2011). Phenomenology of mothers’ experiences in living with children with AD/HD disorder. Procedia-Social and Behavioral Sciences, 30, 1630-1634. https://doi.org/10.1016/j.sbspro.2011.10.316

Hivadi, B., Mirzayi, S. M., Bahrami, H., & Salehi, M. (2007). Comparison of irrational believes between mothers of severe or profound mentally handicapped children with healthy children Mothers. Jrehab; 8(3), 75-80. (In Persian)

Kermanshahi, S., Vanaki, Z., Ahmadi, F., Kazemnejad, A., & Azadfalah, P. (2008). Children with learning disabilities: A phenomenological study of the lived experiences of Iranian mothers, International Journal of Qualitative Studies on Health and Well-Being, 3(1), 18-26. https://doi.org/10.1080/17482620701757284

Khodabakhshi-Koolaee, A., Aghakhani Kooshki, M., &, Kalhor, N. (2019). Analysis the experiences of mothers in caring of a disabled child: A phenomenological Study. JPEN, 6(2), 68-75. (In Persian)

Kimiaee, A., Mehrabi, H., & Mirzaee, Z. (2010). A comparative study of the mental health status of fathers and mothers of children with educable mental disabilities in Mashhad. Studies in Education and Psychology, 11(1), 261-278. https://doi.org/10.22067/FE.V11I1.1827 (In Persian)

Kordi, M., Riyazi, S., Lotfalizadeh, M., & Shakeri, M. T. (2017). Relationship of Informed Choice about Fetal Anomaly Screening with Worry and Anxiety in Pregnant Women. Journal of Midwifery and Reproductive Health, 5(2), 867-872. https://doi.org/10.22038/jmrh.2017.8153 (In Persian)

Lebni, J., Ziapour, A., Khosravi, B., & Rahimi Khalifeh Kandi, Z. (2021). Lived experience of mothers of children with disabilities: a qualitative study of Iran. Journal of Public Health, 29, 1173–1179. https://doi.org/10.1007/s10389-020-01215-0

Mahdavi, S. (2015). Guidelines for screening and diagnosing fetal abnormalities. The 8^th International & 13^th National Congres on Quality Improvement in Clinical Laboratories. Tehran, Iran. (In Persian)

Matin, H., Ahmadi, S., & Jalali, M. (2019). Phenomenology of the experiences of mothers of children with learning disabilities. Journal of Family Psychology, 5(2), 53-64. (In Persian)

Mobarak, R., Khan, N. Z., Munir, S., Zaman, S. S., & McConachie, H. (2000). Predictors of stress in mothers of children with cerebral palsy in Bangladesh. Journal of Pediatric Psychology, 25(6), 427–433. https://doi.org/10.1093/jpepsy/25.6.427

Mokhtari, M., & Abootorabi, F. (2019). Lived experiences of mothers of children with cerebral palsy in Iran: A phenomenological study. Child & Youth Services, 40(3), 224-244. https://doi.org/10.1080/0145935X.2019.1594757

Naghdi, N., Ghasemzadeh, S., & Ghobari Bonab, B. (2019). Phenomenology of Lived Experience of Mothers of Children with Down Syndrome DS. Journal of Applied Psychological Research, 10(2), 105-118. https://doi.org/10.22059/japr.2019.72654 (In Persian)

Niazi, M., Shafai Moghadam, E., & Khodadadi, N. (2020). Investigating the quality of life of the disabled family based on the disability of the family member. Journal of Afagh, 3(34), 1-20. (In Persian)

Parliament (2021). Family and Youth Protection Law. Islamic Council Research Center. https://rc.majlis.ir/fa/law/show/1678266

Prudente, C., Barbosa, M., & Porto, C. (2010). Relation between quality of life of mothers of children with cerebral palsy and the children’s motor functioning, after ten months of rehabilitation. Revista Latino-Americana de Enfermagem, 18(2), 149–155. https://doi.org/10.1590/s0104-11692010000200002

Rabani, Z. (2020). Comparison of Coping Styles, Distress Tolerance and Religious Adherence in Mothers of Children with Physical-Motor Disabled and Normal. International Journal of Research in Nursing, 6(4), 10-18. http://dx.doi.org/10.29252/ijrn-06042 (In Persian)

Sadeghitabar, A. (2015). The Importance and Necessity of Screening for Fetal Abnormalities: Achieving the Goal of “Healthy Society Based on Healthy People”. The 8^th International & 13^th National Congres on Quality Improvement in Clinical Laboratories. Tehran, Iran. (In Persian)

Sa'i Ersi, I. (2008). The youth of the population in Iran. Behavioral Sciences, 1(1), 115–130. (In Persian)

Shirzad, A. (2021). Basics of legal protection in marriage contract and couple relations. Master's thesis. Imam Sadegh University, Tehran, Iran. (In Persian)

Temming, L., & Macones, G. (2016). What is prenatal screening and why to do it?. Seminars in Perinatology, 40(1), 3–11. https://doi.org/10.1053/j.semperi.2015.11.002

Verma, I. C., & Puri, R. D. (2015). Global burden of genetic disease and the role of genetic screening. Seminars in Fetal & Neonatal Medicine, 20(5), 354–363. https://doi.org/10.1016/j.siny.2015.07.002

Wu, J., Zhang, J., & Hong, Y. (2017). Quality of life of primary caregivers of children with cerebral palsy: a comparison between mother and grandmother caregivers in Anhui province of China. Child: Care, Health and Development, 43(5), 718–724. https://doi.org/10.1111/cch.12464

Yari, E. (2021). Comparative study of children's rights in Islamic jurisprudence, Iranian and British law. Master's thesis. Isfahan University, Isfahan, Iran. (In Persian)

Zaeri, S., Bahreini, M., Mirzaei, K., Ravanipour, M., & Zarei, S. (2017). Comparison of power hierarchy, cohesion and structure in families with and without a disabled child from the perspective of their mothers. Iranian South Medical Journal, 20, 180-192. http://dx.doi.org/10.29252/ismj.20.2.180 (In Persian)

Woman in Development & Politics

The Lived Experience of Mothers with Children Who Have Mental-Motor Disabilities (An Introduction to the Psychological Challenges of Articles 53 and 56 of Family Protection Law and Young Population)

References

References

Volume 22, Issue 1
April 2024
Pages 89-113

The Lived Experience of Mothers with Children Who Have Mental-Motor Disabilities (An Introduction to the Psychological Challenges of Articles 53 and 56 of Family Protection Law and Young Population)

References

References

Volume 22, Issue 1April 2024Pages 89-113

Volume 22, Issue 1
April 2024
Pages 89-113