Document Type : Research Paper
Authors
1 Department of Family Study, Faculty of Education and Psychology, Azarbaijan Shahid Madani University, Tabriz, Iran.
2 , Graduated with a master's degree in women's studies, Azarbaijan Shahid Madani University, Tabriz, Iran.
Abstract
In recent years, due to the decrease in the rate of childbearing, efforts have been made in the policy system, among which we can mention the plan for the youth of the population and support for the family approved in March 2019. In the articles of this plan, the limitation of screening is mentioned. In general, it should be said that the impact of disabled children on the family system has attracted the attention of experts as a serious problem for years.
Screening tests are one of the ways that can be used to detect a fetus with disabilities or genetic problems before birth. Screening tests are a set of tests that are performed in order to check the health of the fetus and to screen children at risk in terms of infectious diseases, Down syndrome and some other genetic defects and physical abnormalities in different months of pregnancy. The purpose of this research is to identify the individual-social considerations of Elimination of prenatal screening of pregnant mothers. It seeks to answer the question of what difficulties and problems people with disabilities and families with disabled children face. The research method is qualitative and its approach is phenomenology. The phenomenological approach is a suitable method for investigating people's lived experiences. The research sample in this article are mothers who have a disabled child and have referred to the rehabilitation center for speech therapy and occupational therapy classes. Based on this, the lived experiences of 13 mothers were collected. Respondents were selected by purposive sampling and data were collected through semi-structured interviews. Narratives of the investigated samples were categorized into two main dimensions:
1. Individual issues include educational problems, lack of information and ignorance, feelings and emotions, and communication issues. Regarding educational issues, it can be said that they mean the problems that mothers face in the way of their children's learning in educational centers. Some issues and problems are directly related to the quality of providing services in rehabilitation and educational centers. Others are related to the mental problems of such children. Lack of information in any field is harmful. The mothers said that if they themselves and those around them had the necessary knowledge about child birth and post-birth care, they would probably experience a better situation. These Families experience diverse and different emotions. Most mothers complain to God about having a sick child and feel that it is a sign of God's injustice. The presence of a sick child in the family disturbs the communication of family members both inside and outside the family. Economic problems are one of the most important concerns of such families, because whatever they earn, they spend on doctor's visits, medicine, occupational therapy classes, and special nutrition for children, and thus. Their welfare decreases
2. The social part includes issues of social labeling and social support, each of which includes subsets. Social label and social support. Social label issues are those issues and problems that families inevitably endure from others. Social support is discussed in two parts: problems of facilities and medical support.
It can be concluded that the presence of a sick child in the family has many effects on all aspects of the life of the family members, especially the mother. The results of this research can be useful in the legislative process for population increase and challenges related to prenatal screening of pregnant mothers and reducing the birth of sick children. The simultaneous analysis of the categories shows a general picture of the phenomenon of the presence of a sick child in the family, which can be said to be fundamentally different from a normal family.
This conclusion has two very important benefits; 1. A more effective step can be taken to reduce the problems of such families, in this way, both public education and public awareness are necessary to reduce social factors, and it is necessary to pay attention to the Psychotherapy of family members, to reduce individual factors. 2. By identifying all the challenges that a family faces after the birth of a sick child, the necessity and importance of preventing the birth of such babies is felt, which according to the aforementioned discussions, prenatal screening of pregnant mothers can be the most important and efficient measure in this field. So that the effort of the government and the people is to increase the healthy population of the country.
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